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MEDIA ALERT                   

EMBARGOED: 12:01AM AEST, TUESDAY, MAY 20, 2025

​​

Lisa Curry AO to lead national call for 4,000+ adult volunteers
for world’s largest genetics study on eating disorders

​​Triple Olympian Lisa Curry AO will front a national appeal next
Tuesday, May 20, for 4,000+ adults with lived experience of an
eating disorder, to join the world’s largest genetics investigation into
the risk factors driving these complex illnesses.
1

 

The study will strive to pinpoint the hundreds of genes influencing a
person’s risk of developing anorexia nervosa, bulimia nervosa,
binge-eating disorder and Avoidant Restrictive Food Intake Disorder
(ARFID), to improve treatment, and save lives. 

 

Ms Curry’s appeal for study volunteers, in partnership with researchers,
doctors and patients Australia-wide will coincide with the publication
of an article in MJA Insight+, revealing how the complex interplay of
genetic, environmental and psychological factors in eating disorders,
2
has hindered effective treatment breakthroughs.3

The Aussie sporting legend, mother-of-three, grandmother-to-three,
wellness entrepreneur and author is supporting the genetics study due to the heartbreaking loss of her daughter Jaimi, 33, who was trapped in an eating disorder for 18 years.

 

“Too little is known about eating disorders, which affect over a million Australians.4

 

“Individuals and families affected deserve answers, earlier intervention, and personalised treatments that work,” said Ms Curry.

 

“This investigation will unite global experts to unravel the complex genetic and environmental puzzle behind eating disorders.”

 

To learn more about the investigation striving to decode the genetics of eating disorders to identify risk, and transform treatment, tee up an interview with a spokesperson overleaf.

 

Volunteers can head to edgi2.org or email edgi2@qimrb.edu.au.

EDGI2 thumbnails (Instagram Post (45)).png

AVAILABLE FOR INTERVIEW

LISA CURRY AO​

NB. Lisa Curry AO has provided an extensive, pre-recorded VNR interview + supporting overlay & audio grabs, which are available for download from our digital media kit: edgi2mediakit.org​​​

EDGI2 AUSTRALIA INVESTIGATORS

Professor Nick Martin

Head, Genetic Epidemiology, QIMR Berghofer Medical Research Institute & Lead Investigator, Eating Disorders Genetics Initiative (EDGI) 2, BRISBANE

Professor Sarah Maguire OAM

Chief Investigator, EDGI2 Australia, Clinical Psychologist & Director,
InsideOut Institute, SYDNEY

EDGI2 GLOBAL LEAD PRINCIPAL INVESTIGATOR

Professor Cynthia Bulik

Distinguished Professor of Eating Disorders; Founding Director, Centre of Excellence for Eating Disorders, University of North Carolina; Founder & Director, Centre for Eating Disorders Innovation at Karolinska Institute; & Principal Investigator, Eating Disorders Genetics Initiative (EDGI) 2, NORTH CAROLINA, USA & SWEDEN

OTHER EXPERTS

Annabel Johnston

Gut health dietitian & founder, Nutrition for Living, BRISBANE

Olivia Soha

Certified Eating Disorder Recovery Coach & Founder & Director of ‘Uncovery’ who lived with an eating disorder, MELBOURNE

Dr. June Alexander

Author, life-writing mentor, blogger, diarist & eating disorder advocate who lived with an eating disorder, GEELONG

Professor Tracey Wade

Matthew Flinders Distinguished Professor, College of Education, Psychology & Social, ADELAIDE

Professor Sarah Cohen-Woods

Professor of Psychology, Flinders University Institute for Mental Health and Wellbeing & Head of the Behavioural Genetic & Environmental Mechanisms Lab, Flinders University, ADELAIDE

Dr Bronwyn Raykos

Clinical psychologist, researcher & founder of Morgan Psychology,PERTH

Dr Tiegan Holtham

Clinical Psychologist, The Flourish Collective & Headspace, DARWIN

Natasha Berthold

PhD student, The University of Western Australia & The Perron Institute, & Visiting Scholar, University of North Carolina’s Centre of Excellence for Eating Disorders, NORTH CAROLINA, USA

PATIENT ADVOCACY GROUP REPRESENTATIVES

Jane Rowan

Executive Director, Eating Disorders Families Australia (EDFA) & lived experience eating disorder carer, BRISBANE

Mark & Gayle Forbes

Co-founders of mental health charity, endED, whose daughters have
both lived with an eating disorder, SUNSHINE COAST

Don Irvine

Father who became an eating disorder advocate after his eldest daughter’s decade-long battle with anorexia nervosa, PERTH

AUSTRALIANS WITH EATING DISORDER EXPERIENCE 

Lexi, 36

Clinical nutritionist who endured more than 25 hospitalisations with anorexia nervosa over 18 years, BRISBANE

Emily, 22

Peer mental health support worker who wrestled with bulimia nervosa & binge eating disorder for over seven years, BRISBANE

Tayla, 25

Dietitian & former elite athlete who waged a silent battle with anorexia nervosa, SUNSHINE COAST

Rosiel, 34

PhD student, eating disorder lived experience consultant & identical twin who battled anorexia nervosa for 25+ years, SUNSHINE COAST

Hayley, 24

Student, artist & aspiring teacher who struggled with anorexia nervosa for nine years, GOLD COAST

Elise, 39

Breathwork & meditation facilitator, empowerment coach, cold immersion specialist who lived with anorexia nervosa for 23 years, SYDNEY

Vanessa, 48

Counsellor who wrestled with binge eating disorder for 25 years, SYDNEY

Sophie, 33

Postdoctoral neuroscience researcher with a family history of eating disorders who struggled with anorexia nervosa for 15 years, SYDNEY

Beck, 37

Lived with anorexia nervosa for 14 years, SYDNEY

Liam, 27

Chief Commercial Officer in custom technology development who grappled with anorexia nervosa for eight years, NEWCASTLE

Dr. June Alexander

Creative art therapist & disability support worker whose

anorexia nervosa robbed her childhood, WOLLONGONG

Kaylee, 26

Author, life-writing mentor, blogger, diarist & eating disorder advocate who lived with an eating disorder, GEELONG

Jenni-Lee, 66

Author, speaker, award-winning writer & counsellor who grappled with anorexia nervosa for nine years, ADELAIDE

Lauren, 35

Mental health peer support worker & mother-of-three who battled anorexia nervosa for 14 years, ADELAIDE

Shannon, 48

Lived experience educator & dog lover who grappled with anorexia nervosa & bulimia nervosa for more than three decades, PERTH

Sophie, 27

Aspiring primary school teacher who wrestled with other specified feeding or eating disorder (OSFED) from 15 years of age, PERTH

MEDIA CONTACTS + INTERVIEWS

Kirsten Bruce & Sam Jacobs, VIVA! Communications

M 0401 717 566 | 0422 654 404

T   02 9968 3741 | 02 9968 1604

E   kirstenbruce@vivacommunications.com.au |       sam@vivacommunications.com.au

Should you suspect you, or a loved one, may be living with an eating disorder, speak to your local healthcare practitioner without delay, or head to insideoutinstitute.org.au to complete their online screener and assessment, and to access more information and professional support.

 

Australian professional patient support services offering 24/7 helpline services include:

 

  • Butterfly National Helpline: 1800 334 673

  • Beyond Blue: 1300 22 4636

  • LifeLine: 13 11 14

  • Men’s Line Australia: 1300 78 99 78

  • Kids Help Line: 1800 55 1800

References

  1. National Eating Disorders Collaboration. What is an Eating Disorder? [Website]. 2024 [Available from: https://nedc.com.au/eating-disorders/eating-disorders-explained/whats-an-eating-disorder].

  2. National Eating Disorders collaboration. Risk & Protective Factors 2025 [Available from: https://nedc.com.au/eating-disorders/eating-disorders-explained/risk-and-protective-factors].

  3. Grilo CM. Treatment of Eating Disorders: Current Status, Challenges, and Future Directions. Annu Rev Clin Psychol. 2024;20(1):97-123.

  4. National Eating Disorders Collaboration. Eating Disorders in Australia 2025 [Available from: https://nedc.com.au/eating-disorders/eating-disorders-explained/eating-disorders-in-australia]

MEDIA CONTACTS
Kirsten Bruce & Sam Jacobs VIVA! Communications

M         0401 717 566 | 0422 654 404

E          kirstenbruce@vivacommunications.com.au | sam@vivacommunications.com.au

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